Join our Advocacy Efforts in Support of Ellie's Law

Hear from Jacob Kohn of LobbyIt on the importance and impact of these efforts. After watching the video, please click here or call (202) 471-1956 to be connected to your state officials. Below the video, there are talking points for you to reference. 

 

Recommended Talking Points  

"Hello, my name is ______ I'm calling from ______ to ask that you support Ellie's Law. (Insert personal story or talking points below)." 

• Ellie’s Law (H.R. 1553/S. 852)
• Ellie’s Law would provide the first ongoing dedicated research funding stream for breakthroughs in preventing potentially fatal brain aneurysms from rupturing and improving the long-term medical consequences and quality of life issues for aneurysm survivors.
• Ellie’s Law is seeking $50 million over 5 years from NIH/NINDS
• An estimated 6 million people in the United States, or 1 in 50 people, have an unruptured brain aneurysm.

• Each year, an estimated 30,000 people in the United States suffer a brain aneurysm rupture, 50 percent of which are fatal. Of those who survive, about 66 percent suffer some permanent neurological deficit.

• Despite the widespread prevalence of this condition and the high societal cost it imposes on the nation, the federal government only spends approximately $2.08 per year on brain aneurysm research for each person afflicted with a brain aneurysm.

• The combined lost wages of survivors of brain aneurysm ruptures and their caretakers are approximately $150 million per year.

• Brain aneurysms are more likely to occur in women than in men (by a 3 to 2 ratio) and more likely to rupture in African-Americans (2.1 to 1 ratio) and Hispanics (1.67 to 1 ratio) than Caucasians.