Historic brain aneurysm legislation is introduced on
Capitol Hill and we need YOU.
“Ellie’s Law” (H.R.
6185), named after Ellie Helton, a vibrant 14-year-old girl who lost her
life to a brain aneurysm, was formally introduced in the U.S. House of Representatives
by Representatives Renee Ellmers (R-NC) and Yvette Clarke (D-NY). If passed,
this legislation would authorize $25 million in federal funding for brain
aneurysm research.
Increased funding for brain aneurysm research is the
key to finding effective treatments, interventions, and ways to prevent
aneurysms from developing.
Ellie's Law provides the National Institute of Neurological
Disorders and Stroke (NINDS) with $25 million ($5 million per year for 5 years)
to conduct or support further comprehensive research on unruptured intracranial
aneurysms, studying a broader patient population diversified by age, sex, and
race.
How can you help?
Be a brain aneurysm advocate today - exercise your rights as
a citizen and advocate for an issue that matters to you and has affected
you.
To get the bill signed into law we need more cosponsors.
Please call your representative’s DC office, ask to speak with their healthcare
staffer, and urge them to sign on as a cosponsor to Ellie’s Law (H.R.
6185)
To be directed to your representative’s office, you can call
the House switchboard operator: (202) 225-3121
If you need to look up your representative’s name, you can
find it by searching with your zip code here: http://www.house.gov/representatives/find/
Make your voice heard!
Here are some key points we recommend to help the staffer
understand the importance:
- Tell
them why this is important to you as a constituent.
- An
estimated 6 million people in the United States have an unruptured brain
aneurysm, or 1 in 50 people.
- The
combined lost wages of survivors of brain aneurysm ruptures and their
caretakers are approximately $138 million per year.
- Despite
the widespread prevalence of this condition and the high societal cost it
imposes on the Nation, the Federal Government only spends approximately $0.83
per year on brain aneurysm research for each person afflicted with a brain
aneurysm.
Every day important causes and issues, like brain aneurysm
research, are being championed by people who care – people like you. We ask you
to make a difference and take action today.
Sincerely,
Christine Buckley
Executive Director
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Brain Aneurysm Foundation
